One of the hidden features of CHARGE syndrome is the determination and strong character these children display. Better understanding will lead the way to interventions, therapies and educational strategies which can help people with CHARGE syndrome overcome many of the obstacles in their lives. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.Ĭontinued research is needed to help us understand the medical and developmental challenges facing individuals with CHARGE. All are likely to require medical and educational intervention for many years. Most have hearing loss, vision loss, and balance problems, which delay their development and communication. Swallowing and breathing problems make life difficult even when they come home. They spend many months in the hospital and undergo many surgeries and other treatments. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. CHARGE syndrome is a recognizable (genetic) pattern of birth defects, which occurs in about one in every 9-10,000 births worldwide. CHARGE Syndrome is a congenital set of symptoms in children resulting due to a genetic disorder.
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